PATIENTS DIAGNOSED (WHO, 2012)
LIVES LOST (WHO, 2012)
CLINICAL TRIAL ENROLLMENT RATE
As the history of oncology shows us, when patients and doctors are empowered to work together to drive innovation, rapid progress can be made. In the digital era, we recognize an urgent need to connect patients to the researchers who are working to save their lives, and conversely, connect those researchers directly to the demographic most likely to financially support their work.
We hereby call on the scientific community to develop research protocols that are meaningful to a patient facing terminal disease today. In return, we call on the patient community to engage, learn and then champion the research work you believe in the most.
Proof of Concept
As our pilot CUSP-ND project demonstrates, by connecting isolated experts, patients, advocates and funding partners across different continents, we were able to create a powerful working group focused on delivering meaningful experimental therapies to patients.
How it works
It takes just a few seconds to register your profile and gain unlimited access to this site. In order to then progress to participating actively, you will need to authenticate your status as a physician, patient, regulator, advocate or funder, at your leisure.
We require this step because this then allows every member to filter discussions and responses by different stakeholder groups, and to be sure the data presented reflects opinion and comment from ratified sources.
Above all we hope you will contribute, without which this platform can never reach its full potential.
This website is built and maintained by volunteers and patient advocates. There is no revenue generated by this website.